I had my 4 month follow-up (which they now call long-term follow-up)  with my oncologist yesterday.  Everything is good.  All I have to do is bump up my Vitamin D intake.  This feels so good.  I try not to get stressed over it but it’s hard not to.  The doctor said this is very common.  This time it was only the morning before I went where last time I struggled for a week.  I love that he talks about future tests like bone density “in a year or so”….love that word “future”.

I’ve resorted to doing instant gratification easy knitting to try to get back into it.  I also need color.

 

The faithful Mason Dixon ballband pattern and the ever so fun Tribble.

Today I crocheted a little.  I’m not so wild about that at all so don’t know if I’ll make any more.  It’s cute but I’d rather knit.

So that’s my creative energy for the week.  The color is helping a lot.

A few weeks ago when our family went to Oregon for the weekend, the girls and I decided to have some fun with hair. I wanted a little pink streak but they were actually dying their hair.  Mine faded but the other day I saw on the Today show a very temporary way to do it.  I spent hours tonight trying to find the product because I couldn’t understand what they called it.  I finally found it and ordered it!

Hair Flairs Color Rub:

You just hold it against a strand of hair and rub it on!  I’m not going to do anything freaky with it but  pink is my color these days and it’s a fun way to play with it!

Tomorrow I really hope to get to church so I’d better get myself off to bed.

I’ll be going to sleep thinking about the unspeakable joy I got ahold of before Christmas, I need it back!  :)

 

Yep, we got snow today.

We were supposed to get wind and rain but surprise…it snowed all afternoon but of course didn’t stick.  Big white beautiful flakes who refuse to show their faces on camera.  It looks like it’s on the forecast for tomorrow, too.  I guess above us not too far it is sticking.  It’s been kind of fun to watch.

 

Well, we just had Daylight Saving Time, do I ever feel it!  I wanted to get back to church today but when I woke up I couldn’t make myself get up.  I just can’t keep going on with not enough sleep.  They make it too easy, we have an app and I was able to watch it online.  I felt awful, though, Tyler got up fully-dressed and ready to go.  I wondered if I could get myself presentable enough to at least drive him out there but I’ve never done that and the idea of sending him in with no one knowing was just something I couldn’t do.  Hopefully there won’t be a next time, but if there is..that’s what I’ll do.

Three years ago, my kids and Kenny gave me a Weeping Pussy Willow tree.  I have never seen it in action.  The first spring, I was being diagnosed with breast cancer.  Last year I was recovering from surgery.  This year I was determined I would not miss out.  I went outside this afternoon to see what it was doing.

I’d sure like to get a good angle, but I’m so awkward right now, can’t really crouch down and expect I’ll stay there…lol.  But it’s starting to bud!  I hope to remember to watch it.  I love the signs of spring!

We had a terrible incident in our community last week.  A fellow went into our county courthouse, shot a deputy and stabbed a judge in the front doorway.  Neither were badly injured although the gun had been wrestled from the deputy and that’s what he shot her with, the judge thought she was dead.  The guy got away and the little city of 4000 lived in terror for a day.  They thought he was holed up in a house, the SWAT team was there, my friend was in lockdown at the courthouse, it was awful.  My niece said out her window the police were closer to her house than the tv cameras.  There is no motive known at this time but the fellow was turned in by his mother, he was an hour away.  Evidently he ran into a law firm and used their phone, they didn’t realize it was him at the time.  He had ridden the bus to the courthouse and not sure if his mom was clear home then or what.  All so weird.

Anyway, I am trying to be aware of what is around me and enjoying the burst of spring.  Intriguing to me that we can totally miss it if we aren’t aware!

 

Tonight on the news I saw a story on NBC national news tonight.  Have you ever heard of Little Free Libraries?  People set up little libraries in public places be it their yard or a public lot and offer the books for free lending.

You can choose to have a theme for your library like gardening or children’s books.  You might choose to offer a set of books like Dr. Seuss.  Maybe local history books.  Or, you can have an assortment of books.  I just thought it was the most fun idea I’d seen in a long time and I wanted to share.

How cute is this?

Well, it’s at least given me food for thought.  One of the benefits is creating a sense of community.

 

 

I got a gift card from Kenny for Barnes and Noble.  You know how it is if you have a gift card?  You don’t want to get just any old thing.  We go there often and every time I walk around looking at books, water bottles, doodads, etc.  I’ve bought a few things but used my own money for it.  Tonight  I found the very thing!

I love reading the background to series like this.  This book mixes the production of the show with customs, history, etc.  It will keep me busy until next season starts.  The book is hard bound and special…I’ll really enjoy it, I’m sure.  This one wouldn’t have been as fun on my kindle, at least I don’t think so.  Once in awhile it’s nice to have a book to dream through.

If you haven’t seen Downton Abbey, you can see all of season 1 on Netflix and all of season 2 on PBS.  I’ve watched it all on my iPad and thoroughly enjoyed it.

 

I drift along, not really doing much of anything.  I’ve been thinking I really need to start living life with purpose, every minute but I have really struggled with my ambition.  I don’t care about doing much of anything these days.  My sleep has been bad although I’m going to try to do something to change that. I bought Alteril today to see if that helps since I’ve heard it is good (and natural).

I saw my doctor at the U on Monday and Kenny said he noticed how much better I felt after that.  He is just so encouraging.  He assured me that this really was a big surgery and it just takes time to recover.  My next one is a moderate surgery and although it is a day surgery, they will keep me over night since I am so far away and because the last time I bled the next morning and got sent back to surgery in the morning.  That makes me feel better.

I made it to work today.  Last Wednesday I went back for the first time and worked that day to get my taxes done.  I tried to go on Friday and lasted about 45 minutes.  I could not stay awake so I went home and slept for 3 days!  Today I felt better.

I got a new electric ball winder to save wear and tear on my arm.  I’m not sure yet if I like it.  It sure makes noise!  Here are my first 2 attempts at using it!

first try was kind of wonky:

second try was better but still not great:

Hopefully it will be fun figuring it out.  :)

Spring is coming!  It has always been a favorite time of the year for me and this year I am going to have to “stir it up”.  How easy it is to drift on through and not notice.  I went out on the porch yesterday in the beautiful sunshine and took a look at the hydrangeas starting to leaf out a bit.

I think we better get out there and clean out the undergrowth.  I can no longer garden without gloves without risking lymphedema.  I love flowers, though, and should get myself inspired to get something blooming around here.  I don’t have much room for cutting flowers but need to figure out how to do that anyway.

I just had to make myself come here and do something, I’ve been avoiding it!  So here I am and back I will be.

 

They are all the same to me.  I am so messed up on my sleep.  3 out of 5 nights I did not sleep at all…but it has been going on for about 2 weeks.  When I don’t sleep at night, I often don’t sleep in the daytime either.  Then when I finally sleep, I sleep half the next day, too.  I hate this loop I’ve been in.  It just makes me so tired all the time.  I’ve been discouraged.  It’s just hard.

Today I was thinking about how my new goal was to live life more fully but I seem to have forgotten about it.  One good things, though, is that I think a lot about things I’d like to change…I’m just not doing a thing.  I think I’m going to go out to the car and see how hard it is to get out of the driver seat…I’d think I should be able to do that.  If so, I will try to get out a little.

The recovery is slow but I am on track supposedly.  I am seeing the doctor next Monday so we’ll see what he says then.  I am sure in the end this is going to have been worth it.

I wouldn’t be having so much trouble if my arm that has nothing to do with this didn’t give me so much trouble.  The pain is unreal.  I am trying Aleve now but I don’t think that is doing the trick.  I’ve tried my pain pills and Ibuprofen.  Nothing helps.  I’ve tried doing some of the exercises I did when my other arm needed it and I can’t tell if that really does it either.

Other than this, everything is good.  I’m still alive.

I’ve gotten super addicted to Downton Abbey in the past week.  I found it on Netflix one night when I couldn’t sleep.  Usually I have a little trouble getting into British drama like this although I like it…but Downton Abbey just gets you from the start and you have no trouble keeping the story line straight.  Now that I’m caught up with the episodes, I’m having trouble waiting for Sunday.  I’ve watched a lot of the behind the scenes clips and the fascination has grown.  Fun!

 

They meant it when they said it is a long recovery.  I’m doing well, still uncomfortable at times but walking around a lot, I’m sitting up a lot and still sleeping on the big chair but a few times I have moved to the bedroom although that is a big hassle because I cough when I’m on my back and I can’t sleep any other way.  Just last night I figure out how to sit my own self up…it’s hard and I have to think about it before I try.  Appreciate the simple things, this is so eye-opening!

I saw the doctor on Monday and had all my tubes and drains removed.  That has made such a difference.  It’s not so much work just to exist.  I know that sounds funny but every time I shift or get up or sit down or anything, I had to arrange those.  Now they are gone.  They even took out the doppler wire which they usually don’t take out until 3 weeks.  They wanted to save me another trip up there.  All is on track.  I won’t go see them until early March again.  The next surgery will be in 2 1/2 months.

I have actually been getting the urge to knit again.  Last night I cast on a scarf, 500 stitches.  It took me all night to cast it on and then knit most of one row.  I hope I stick with it but today I didn’t touch it at all.  I slept off and on most of the day.  I may have a little mistake and I want to see it in the daylight so it will have to wait until tomorrow.

We had to forego our date night as it’s so much work for me to get dressed and after sleeping most of the day, I didn’t feel like trying to get dressed to go out.  It’s too comfy in my flannel jammies.  :)

I do a lot of thinking about life these days.  What do I want it to be like?  I have a few things I’m going to work on personally in an attempt to be clearer and more forthright on things I need to be.  It’s so easy to drift through life and not make any attempt to know what’s inside you and what could be changed to make life more fulfilling.

I certainly have the time to be doing this!

 

Last night I finally got a good night’s sleep and all day today all I want to do is go back to sleep.  Sometimes I feel great  and other times I’m uncomfortable.  I never really expected that recovering would be as hard as it is.

I guess I should give a mini-version of surgery and hospital stay.  I went to the University of WA Medical Center for surgery on January 10, 2012.  The surgery was scheduled for 8 hours.  I had a DIEP flap reconstruction.  This involves removing tissue from my stomach, removing the tissue expander which saved my own skin, and taking blood vessels and a flap of skin to recreate what was removed.  I was put directly into ICU because the flap needs to be checked every hour, and believe me, they checked it every hour.  The next morning they discovered I was losing a lot of blood…as a matter of fact, I was on my 2nd unit of blood and I was losing it as fast as it was going in.  Dr. Louie said I hadn’t had excessive bleeding at all but at times they don’t really find the cause, he could just spray something on the area to make it stop.  He was so sweet about it, assured me the flap was not in danger and I wasn’t in danger.  They had to call Kenny because he’d spent the night at a friends’.  This surgery took an hour and all was well.

I stayed in ICU from Tues. until Thurs.  At that point I was released to my own room.  I’m sure as far a surgeries go, it was uneventful.  Just learning to get out of bed, standing up without pulling on my ab muscles.  I cannot use my right arm much at all for months to come, can’t lift anything more than 5 lbs. and this includes using my arm to push off, too.  I did lots of hall walking and lots of time sitting as well as sleeping.   I learned to walk up and down steps, so much fun.  As things began to progress, they started talking about letting me go.  Dr. Louie had to go out of town to a conference and he suggested Sun.  His team asked me Sat. if I was ready and it scared me, no I wasn’t ready.  Sunday I was.

Amazingly we had started getting snow and it felt like a blizzard when we left the hospital.  For a few miles it was white everywhere and then we started hitting bare pavement.  The trip home was uneventful other than the fact we couldn’t figure out how to get my pants on over the drain tubes so the nurse had rolled my waistband down and it laid on the incision the whole time home which was very very uncomfortable.

When we got home, I was surprised how stiff I was and how hard it was to get me out of the car since I can’t  use my arms to pull myself up either.  Trying to walk when I felt so stiff and had the pants rolled was not fun at all, I was in tears by the time I hit the porch.  We didn’t have any idea what I could but I found a dress in my drawer that was easy to get oner my head so that’s what I wore the first 24 hours home.  We did figure out that we could pull my waistband out and put it up over the drains because the tubing is quite long.  Believe me, though, it is very strange to have them all (3) jangling around, There’s virtually no way to hide them.

The first two nights were miserable.  I am fortunate to have a wedge from my friend, Linda, but I hurt when I laid on my back for too long and the only other option other than trying to change the angle that I was laying was to sit up on the chair straight up with nowhere to put my head.  If I slid the least bit, it was impossible to get myself off the chair.  Laying on the bed is completely impossible at this point to get off of.

Rhianna and I were wondering about getting a lift chair so she put out the word on Facebook and  within minutes her mother-in-law texted her to say her mother had one.  We had it here that night, right ahead of the pending snow storm that has now kept us paralyzed for days.  I am now independent!!!!

I’ve spent the last few days resting as much as I can.  I also have to get up and walk around but other than that, that’s all I do,  Kenny’s been able to work a little bit.  It was weird to have the city become stuck in all the weather at the same time I came home to recover.  He wouldn’t have been able to work several of those days anyway.

That’s the week in a nutshell so to speak.  I’ll be back soon with a life update.  I’m ready to think about other things!

 

I haven’t been here to report that my surgery was successful, I spent 5 days in the hospital and now am home recovering and doing well. I am working at getting the whole story written down but am having trouble remembering details and needing family to help me fill in.

I’ll be back soon to fill everything in.

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